The Israeli Rett Syndrome Center: Evaluation according to the transdisciplinary play-based assessment

Meir Lotan, Iris Manor-Binyamini, Cochavit Elefant, Judy Wine, Einat Saraf, Yael Yoshei

Research output: Contribution to journalReview articlepeer-review

Abstract

Rett syndrome (RS) is a neurodevelopmental syndrome of genetic origin, which mainly affects women. Individuals diagnosed with RS exhibit a variety of functional difficulties that impair their quality of life. The variety of impairments and the differences between each child makes it necessary to administer skilled treatment, individually tailored to each client. Since the foundation of proper treatment is based on a structured, well-administered, insightful assessment, the individual with RS with her complex array of difficulties should benefit from such a procedure. This notion has led to the establishment of the Israel Rett Syndrome Center (IRSC). The center includes a medical branch located at the Safra Shildren's Medical Center at Tel Hashomer, and an education/rehabilitation team who performs assessments in special education facilities and residential settings throughout Israel. The assessment team works by means of arena assessment, according to the concept of play-based assessment. This article presents the working model used by the education/rehabilitation team at the IRSC. The principles and working characteristics of the IRSC team are suggested here as a potential model for establishing additional teams, presenting similar evaluation services for other individuals with RS as well as for analogous populations.

Original languageEnglish
Pages (from-to)1302-1313
Number of pages12
JournalThe Scientific World Journal
Volume6
DOIs
StatePublished - 10 Oct 2006
Externally publishedYes

Keywords

  • Assessment
  • Evaluation
  • Israel
  • Multiple disabilities
  • Play-based assessment
  • Rett syndrome
  • Teamwork

ASJC Scopus subject areas

  • General Environmental Science
  • General Biochemistry, Genetics and Molecular Biology

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