Pediatric spinal cord injury rehabilitation: A protocol for an international multicenter project (SINpedSCI)

Kirsti Skavberg Roaldsen; Vivien Jørgensen; Wiebke Höfers; Susanne Sällström; Marika Augutis; Per Ertzgaard; Kerstin Wahman; Mona Strøm; Kristine Marie Vege; Kristine Sørland; Gen Lin Liu; Qi Zhang; Yu Xi Yang; Yang Chen; Olga Zakharova; Zinaida Trukhankina; Atheer Ghatasha; Eman Hamdan; Tal Krasovsky; Dafna Guttman; Katharina Stibrant Sunnerhagen; Peter W. New; Tamara Bushnik; Renat Sukhov; Johan K. Stanghelle

doi:10.3233/PRM-201518

Pediatric spinal cord injury rehabilitation: A protocol for an international multicenter project (SINpedSCI)

Kirsti Skavberg Roaldsen, Vivien Jørgensen, Wiebke Höfers, Susanne Sällström, Marika Augutis, Per Ertzgaard, Kerstin Wahman, Mona Strøm, Kristine Marie Vege, Kristine Sørland, Gen Lin Liu, Qi Zhang, Yu Xi Yang, Yang Chen, Olga Zakharova, Zinaida Trukhankina, Atheer Ghatasha, Eman Hamdan, Tal Krasovsky, Dafna GuttmanKatharina Stibrant Sunnerhagen, Peter W. New, Tamara Bushnik, Renat Sukhov, Johan K. Stanghelle

Department of Physical Therapy

Research output: Contribution to journal › Article › peer-review

Abstract

PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with ≥20 adolescents aged 13-17 years at least 6 months' post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents' plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.

Original language	English
Pages (from-to)	395-403
Number of pages	9
Journal	Journal of Pediatric Rehabilitation Medicine
Volume	15
Issue number	2
DOIs	https://doi.org/10.3233/PRM-201518
State	Published - 2022

Bibliographical note

Publisher Copyright:
© 2022 - The authors. Published by IOS Press.

Keywords

adolescents
Children
interdisciplinary
international
management
multicenter
multidisciplinary
patient perspective
psychosocial aspects
specialized rehabilitation
spinal cord injury
Cross-Sectional Studies
United States
Humans
Patient Discharge
Spinal Cord Injuries/rehabilitation
Health Promotion
Multicenter Studies as Topic
Adolescent
Child
Neurological Rehabilitation

ASJC Scopus subject areas

Rehabilitation
Physical Therapy, Sports Therapy and Rehabilitation
Pediatrics, Perinatology, and Child Health

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.3233/PRM-201518

Cite this

Roaldsen, K. S., Jørgensen, V., Höfers, W., Sällström, S., Augutis, M., Ertzgaard, P., Wahman, K., Strøm, M., Vege, K. M., Sørland, K., Liu, G. L., Zhang, Q., Yang, Y. X., Chen, Y., Zakharova, O., Trukhankina, Z., Ghatasha, A., Hamdan, E., Krasovsky, T., ... Stanghelle, J. K. (2022). Pediatric spinal cord injury rehabilitation: A protocol for an international multicenter project (SINpedSCI). Journal of Pediatric Rehabilitation Medicine, 15(2), 395-403. https://doi.org/10.3233/PRM-201518

@article{1fad4b9269c44955ba278b6698680d6e,

title = "Pediatric spinal cord injury rehabilitation: A protocol for an international multicenter project (SINpedSCI)",

abstract = "PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with ≥20 adolescents aged 13-17 years at least 6 months' post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents' plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.",

keywords = "adolescents, Children, interdisciplinary, international, management, multicenter, multidisciplinary, patient perspective, psychosocial aspects, specialized rehabilitation, spinal cord injury, Cross-Sectional Studies, United States, Humans, Patient Discharge, Spinal Cord Injuries/rehabilitation, Health Promotion, Multicenter Studies as Topic, Adolescent, Child, Neurological Rehabilitation",

author = "Roaldsen, {Kirsti Skavberg} and Vivien J{\o}rgensen and Wiebke H{\"o}fers and Susanne S{\"a}llstr{\"o}m and Marika Augutis and Per Ertzgaard and Kerstin Wahman and Mona Str{\o}m and Vege, {Kristine Marie} and Kristine S{\o}rland and Liu, {Gen Lin} and Qi Zhang and Yang, {Yu Xi} and Yang Chen and Olga Zakharova and Zinaida Trukhankina and Atheer Ghatasha and Eman Hamdan and Tal Krasovsky and Dafna Guttman and Sunnerhagen, {Katharina Stibrant} and New, {Peter W.} and Tamara Bushnik and Renat Sukhov and Stanghelle, {Johan K.}",

note = "Publisher Copyright: {\textcopyright} 2022 - The authors. Published by IOS Press.",

year = "2022",

doi = "10.3233/PRM-201518",

language = "English",

volume = "15",

pages = "395--403",

journal = "Journal of Pediatric Rehabilitation Medicine",

issn = "1874-5393",

publisher = "IOS Press",

number = "2",

}

Roaldsen, KS, Jørgensen, V, Höfers, W, Sällström, S, Augutis, M, Ertzgaard, P, Wahman, K, Strøm, M, Vege, KM, Sørland, K, Liu, GL, Zhang, Q, Yang, YX, Chen, Y, Zakharova, O, Trukhankina, Z, Ghatasha, A, Hamdan, E, Krasovsky, T, Guttman, D, Sunnerhagen, KS, New, PW, Bushnik, T, Sukhov, R & Stanghelle, JK 2022, 'Pediatric spinal cord injury rehabilitation: A protocol for an international multicenter project (SINpedSCI)', Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 2, pp. 395-403. https://doi.org/10.3233/PRM-201518

TY - JOUR

T1 - Pediatric spinal cord injury rehabilitation

T2 - A protocol for an international multicenter project (SINpedSCI)

AU - Roaldsen, Kirsti Skavberg

AU - Jørgensen, Vivien

AU - Höfers, Wiebke

AU - Sällström, Susanne

AU - Augutis, Marika

AU - Ertzgaard, Per

AU - Wahman, Kerstin

AU - Strøm, Mona

AU - Vege, Kristine Marie

AU - Sørland, Kristine

AU - Liu, Gen Lin

AU - Zhang, Qi

AU - Yang, Yu Xi

AU - Chen, Yang

AU - Zakharova, Olga

AU - Trukhankina, Zinaida

AU - Ghatasha, Atheer

AU - Hamdan, Eman

AU - Krasovsky, Tal

AU - Guttman, Dafna

AU - Sunnerhagen, Katharina Stibrant

AU - New, Peter W.

AU - Bushnik, Tamara

AU - Sukhov, Renat

AU - Stanghelle, Johan K.

PY - 2022

Y1 - 2022

N2 - PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with ≥20 adolescents aged 13-17 years at least 6 months' post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents' plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.

AB - PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with ≥20 adolescents aged 13-17 years at least 6 months' post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents' plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.

KW - adolescents

KW - Children

KW - interdisciplinary

KW - international

KW - management

KW - multicenter

KW - multidisciplinary

KW - patient perspective

KW - psychosocial aspects

KW - specialized rehabilitation

KW - spinal cord injury

KW - Cross-Sectional Studies

KW - United States

KW - Humans

KW - Patient Discharge

KW - Spinal Cord Injuries/rehabilitation

KW - Health Promotion

KW - Multicenter Studies as Topic

KW - Adolescent

KW - Child

KW - Neurological Rehabilitation

UR - http://www.scopus.com/inward/record.url?scp=85133103009&partnerID=8YFLogxK

U2 - 10.3233/PRM-201518

DO - 10.3233/PRM-201518

M3 - Article

C2 - 34974443

AN - SCOPUS:85133103009

SN - 1874-5393

VL - 15

SP - 395

EP - 403

JO - Journal of Pediatric Rehabilitation Medicine

JF - Journal of Pediatric Rehabilitation Medicine

IS - 2

ER -

Pediatric spinal cord injury rehabilitation: A protocol for an international multicenter project (SINpedSCI)

Abstract

Bibliographical note

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

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