TY - JOUR
T1 - Pediatric spinal cord injury rehabilitation
T2 - A protocol for an international multicenter project (SINpedSCI)
AU - Roaldsen, Kirsti Skavberg
AU - Jørgensen, Vivien
AU - Höfers, Wiebke
AU - Sällström, Susanne
AU - Augutis, Marika
AU - Ertzgaard, Per
AU - Wahman, Kerstin
AU - Strøm, Mona
AU - Vege, Kristine Marie
AU - Sørland, Kristine
AU - Liu, Gen Lin
AU - Zhang, Qi
AU - Yang, Yu Xi
AU - Chen, Yang
AU - Zakharova, Olga
AU - Trukhankina, Zinaida
AU - Ghatasha, Atheer
AU - Hamdan, Eman
AU - Krasovsky, Tal
AU - Guttman, Dafna
AU - Sunnerhagen, Katharina Stibrant
AU - New, Peter W.
AU - Bushnik, Tamara
AU - Sukhov, Renat
AU - Stanghelle, Johan K.
PY - 2022
Y1 - 2022
N2 - PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with ≥20 adolescents aged 13-17 years at least 6 months' post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents' plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.
AB - PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with ≥20 adolescents aged 13-17 years at least 6 months' post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents' plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.
KW - adolescents
KW - Children
KW - interdisciplinary
KW - international
KW - management
KW - multicenter
KW - multidisciplinary
KW - patient perspective
KW - psychosocial aspects
KW - specialized rehabilitation
KW - spinal cord injury
KW - Cross-Sectional Studies
KW - United States
KW - Humans
KW - Patient Discharge
KW - Spinal Cord Injuries/rehabilitation
KW - Health Promotion
KW - Multicenter Studies as Topic
KW - Adolescent
KW - Child
KW - Neurological Rehabilitation
UR - http://www.scopus.com/inward/record.url?scp=85133103009&partnerID=8YFLogxK
U2 - 10.3233/PRM-201518
DO - 10.3233/PRM-201518
M3 - Article
C2 - 34974443
AN - SCOPUS:85133103009
SN - 1874-5393
VL - 15
SP - 395
EP - 403
JO - Journal of Pediatric Rehabilitation Medicine
JF - Journal of Pediatric Rehabilitation Medicine
IS - 2
ER -