Organisation of services and systems of care in paediatric spinal cord injury rehabilitation in seven countries: a survey with a descriptive cross-sectional design

Wiebke Höfers; Vivien Jørgensen; Susanne Sällström; Kristine M. Vege; Mona Strøm; Peter W. New; Tamara Bushnik; Olga Zakharova; Tal Krasovsky; Dafna Guttman; Atheer Ghatasha; Liu Genlin; Chen Yang; Qin Yu-Xi; Kerstin Wahman; Katharina S. Sunnerhagen; Per Ertzgaard; Renat Sukhov; Marika Augutis; Johan K. Stanghelle; Kirsti S. Roaldsen

doi:10.1038/s41393-021-00726-1

Organisation of services and systems of care in paediatric spinal cord injury rehabilitation in seven countries: a survey with a descriptive cross-sectional design

Wiebke Höfers, Vivien Jørgensen, Susanne Sällström, Kristine M. Vege, Mona Strøm, Peter W. New, Tamara Bushnik, Olga Zakharova, Tal Krasovsky, Dafna Guttman, Atheer Ghatasha, Liu Genlin, Chen Yang, Qin Yu-Xi, Kerstin Wahman, Katharina S. Sunnerhagen, Per Ertzgaard, Renat Sukhov, Marika Augutis, Johan K. StanghelleKirsti S. Roaldsen

Department of Physical Therapy

Research output: Contribution to journal › Article › peer-review

Abstract

STUDY DESIGN: International multicentre cross-sectional study.

OBJECTIVES: To describe the organisation and systems of paediatric spinal cord injury (SCI) rehabilitation services in seven countries and compare them with available recommendations and key features of paediatric SCI.

SETTING: Ten SCI rehabilitation units in seven countries admitting children and adolescents with SCI < 18 years of age.

METHODS: An online survey reporting data from 2017. Descriptive and qualitative analysis were used to describe the data.

RESULTS: The units reported large variations in catchment area, paediatric population and referrals, but similar challenges in discharge policy. Nine of the units were publicly funded. Three units had a paediatric SCI unit. The most frequent causes of traumatic injury were motor vehicle accidents, falls, and sports accidents. Unlike the other units, the Chinese units reported acrobatic dancing as a major cause. Mean length of stay in primary rehabilitation ranged between 18 and 203 days. Seven units offered life-long follow-up. There was a notable variation in staffing between the units; some of the teams were not optimal regarding the interdisciplinary and multiprofessional nature of the field. Eight units followed acknowledged standards and recommendations for specialised paediatric SCI rehabilitation and focused on family-centred care and rehabilitation as a dynamic process adapting to the child and the family.

CONCLUSIONS: As anticipated, we found differences in the organisation and administration of rehabilitation services for paediatric SCI in the ten rehabilitation units in seven countries. This might indicate a need for internationally approved, evidence-based guidelines for specialised paediatric SCI rehabilitation.

Original language	English
Pages (from-to)	339-347
Number of pages	9
Journal	Spinal Cord
Volume	60
Issue number	4
DOIs	https://doi.org/10.1038/s41393-021-00726-1
State	Published - Apr 2022

Bibliographical note

Publisher Copyright:
© 2021, The Author(s), under exclusive licence to International Spinal Cord Society.

Keywords

Adolescent
Child
Cross-Sectional Studies
Hospitalization
Humans
Neurological Rehabilitation
Spinal Cord Injuries/rehabilitation
Treatment Outcome

Access to Document

10.1038/s41393-021-00726-1

Cite this

Höfers, W., Jørgensen, V., Sällström, S., Vege, K. M., Strøm, M., New, P. W., Bushnik, T., Zakharova, O., Krasovsky, T., Guttman, D., Ghatasha, A., Genlin, L., Yang, C., Yu-Xi, Q., Wahman, K., Sunnerhagen, K. S., Ertzgaard, P., Sukhov, R., Augutis, M., ... Roaldsen, K. S. (2022). Organisation of services and systems of care in paediatric spinal cord injury rehabilitation in seven countries: a survey with a descriptive cross-sectional design. Spinal Cord, 60(4), 339-347. https://doi.org/10.1038/s41393-021-00726-1

@article{372cc042e60a4e8caad996e98e1f2bde,

title = "Organisation of services and systems of care in paediatric spinal cord injury rehabilitation in seven countries: a survey with a descriptive cross-sectional design",

abstract = "STUDY DESIGN: International multicentre cross-sectional study.OBJECTIVES: To describe the organisation and systems of paediatric spinal cord injury (SCI) rehabilitation services in seven countries and compare them with available recommendations and key features of paediatric SCI.SETTING: Ten SCI rehabilitation units in seven countries admitting children and adolescents with SCI < 18 years of age.METHODS: An online survey reporting data from 2017. Descriptive and qualitative analysis were used to describe the data.RESULTS: The units reported large variations in catchment area, paediatric population and referrals, but similar challenges in discharge policy. Nine of the units were publicly funded. Three units had a paediatric SCI unit. The most frequent causes of traumatic injury were motor vehicle accidents, falls, and sports accidents. Unlike the other units, the Chinese units reported acrobatic dancing as a major cause. Mean length of stay in primary rehabilitation ranged between 18 and 203 days. Seven units offered life-long follow-up. There was a notable variation in staffing between the units; some of the teams were not optimal regarding the interdisciplinary and multiprofessional nature of the field. Eight units followed acknowledged standards and recommendations for specialised paediatric SCI rehabilitation and focused on family-centred care and rehabilitation as a dynamic process adapting to the child and the family.CONCLUSIONS: As anticipated, we found differences in the organisation and administration of rehabilitation services for paediatric SCI in the ten rehabilitation units in seven countries. This might indicate a need for internationally approved, evidence-based guidelines for specialised paediatric SCI rehabilitation.",

keywords = "Adolescent, Child, Cross-Sectional Studies, Hospitalization, Humans, Neurological Rehabilitation, Spinal Cord Injuries/rehabilitation, Treatment Outcome",

author = "Wiebke H{\"o}fers and Vivien J{\o}rgensen and Susanne S{\"a}llstr{\"o}m and Vege, {Kristine M.} and Mona Str{\o}m and New, {Peter W.} and Tamara Bushnik and Olga Zakharova and Tal Krasovsky and Dafna Guttman and Atheer Ghatasha and Liu Genlin and Chen Yang and Qin Yu-Xi and Kerstin Wahman and Sunnerhagen, {Katharina S.} and Per Ertzgaard and Renat Sukhov and Marika Augutis and Stanghelle, {Johan K.} and Roaldsen, {Kirsti S.}",

note = "Publisher Copyright: {\textcopyright} 2021, The Author(s), under exclusive licence to International Spinal Cord Society.",

year = "2022",

month = apr,

doi = "10.1038/s41393-021-00726-1",

language = "English",

volume = "60",

pages = "339--347",

journal = "Spinal Cord",

issn = "1362-4393",

publisher = "Nature Publishing Group",

number = "4",

}

Höfers, W, Jørgensen, V, Sällström, S, Vege, KM, Strøm, M, New, PW, Bushnik, T, Zakharova, O, Krasovsky, T, Guttman, D, Ghatasha, A, Genlin, L, Yang, C, Yu-Xi, Q, Wahman, K, Sunnerhagen, KS, Ertzgaard, P, Sukhov, R, Augutis, M, Stanghelle, JK & Roaldsen, KS 2022, 'Organisation of services and systems of care in paediatric spinal cord injury rehabilitation in seven countries: a survey with a descriptive cross-sectional design', Spinal Cord, vol. 60, no. 4, pp. 339-347. https://doi.org/10.1038/s41393-021-00726-1

TY - JOUR

T1 - Organisation of services and systems of care in paediatric spinal cord injury rehabilitation in seven countries

T2 - a survey with a descriptive cross-sectional design

AU - Höfers, Wiebke

AU - Jørgensen, Vivien

AU - Sällström, Susanne

AU - Vege, Kristine M.

AU - Strøm, Mona

AU - New, Peter W.

AU - Bushnik, Tamara

AU - Zakharova, Olga

AU - Krasovsky, Tal

AU - Guttman, Dafna

AU - Ghatasha, Atheer

AU - Genlin, Liu

AU - Yang, Chen

AU - Yu-Xi, Qin

AU - Wahman, Kerstin

AU - Sunnerhagen, Katharina S.

AU - Ertzgaard, Per

AU - Sukhov, Renat

AU - Augutis, Marika

AU - Stanghelle, Johan K.

AU - Roaldsen, Kirsti S.

PY - 2022/4

Y1 - 2022/4

N2 - STUDY DESIGN: International multicentre cross-sectional study.OBJECTIVES: To describe the organisation and systems of paediatric spinal cord injury (SCI) rehabilitation services in seven countries and compare them with available recommendations and key features of paediatric SCI.SETTING: Ten SCI rehabilitation units in seven countries admitting children and adolescents with SCI < 18 years of age.METHODS: An online survey reporting data from 2017. Descriptive and qualitative analysis were used to describe the data.RESULTS: The units reported large variations in catchment area, paediatric population and referrals, but similar challenges in discharge policy. Nine of the units were publicly funded. Three units had a paediatric SCI unit. The most frequent causes of traumatic injury were motor vehicle accidents, falls, and sports accidents. Unlike the other units, the Chinese units reported acrobatic dancing as a major cause. Mean length of stay in primary rehabilitation ranged between 18 and 203 days. Seven units offered life-long follow-up. There was a notable variation in staffing between the units; some of the teams were not optimal regarding the interdisciplinary and multiprofessional nature of the field. Eight units followed acknowledged standards and recommendations for specialised paediatric SCI rehabilitation and focused on family-centred care and rehabilitation as a dynamic process adapting to the child and the family.CONCLUSIONS: As anticipated, we found differences in the organisation and administration of rehabilitation services for paediatric SCI in the ten rehabilitation units in seven countries. This might indicate a need for internationally approved, evidence-based guidelines for specialised paediatric SCI rehabilitation.

AB - STUDY DESIGN: International multicentre cross-sectional study.OBJECTIVES: To describe the organisation and systems of paediatric spinal cord injury (SCI) rehabilitation services in seven countries and compare them with available recommendations and key features of paediatric SCI.SETTING: Ten SCI rehabilitation units in seven countries admitting children and adolescents with SCI < 18 years of age.METHODS: An online survey reporting data from 2017. Descriptive and qualitative analysis were used to describe the data.RESULTS: The units reported large variations in catchment area, paediatric population and referrals, but similar challenges in discharge policy. Nine of the units were publicly funded. Three units had a paediatric SCI unit. The most frequent causes of traumatic injury were motor vehicle accidents, falls, and sports accidents. Unlike the other units, the Chinese units reported acrobatic dancing as a major cause. Mean length of stay in primary rehabilitation ranged between 18 and 203 days. Seven units offered life-long follow-up. There was a notable variation in staffing between the units; some of the teams were not optimal regarding the interdisciplinary and multiprofessional nature of the field. Eight units followed acknowledged standards and recommendations for specialised paediatric SCI rehabilitation and focused on family-centred care and rehabilitation as a dynamic process adapting to the child and the family.CONCLUSIONS: As anticipated, we found differences in the organisation and administration of rehabilitation services for paediatric SCI in the ten rehabilitation units in seven countries. This might indicate a need for internationally approved, evidence-based guidelines for specialised paediatric SCI rehabilitation.

KW - Adolescent

KW - Child

KW - Cross-Sectional Studies

KW - Hospitalization

KW - Humans

KW - Neurological Rehabilitation

KW - Spinal Cord Injuries/rehabilitation

KW - Treatment Outcome

UR - http://www.scopus.com/inward/record.url?scp=85119398236&partnerID=8YFLogxK

U2 - 10.1038/s41393-021-00726-1

DO - 10.1038/s41393-021-00726-1

M3 - Article

C2 - 34802054

AN - SCOPUS:85119398236

SN - 1362-4393

VL - 60

SP - 339

EP - 347

JO - Spinal Cord

JF - Spinal Cord

IS - 4

ER -

Organisation of services and systems of care in paediatric spinal cord injury rehabilitation in seven countries: a survey with a descriptive cross-sectional design

Abstract

Bibliographical note

Keywords

Access to Document

Other files and links

Fingerprint

Cite this