Importance of headrests for function: parental perspectives

Purpose: This study aimed to explore parent-reported perceptions of the usability and functional impact of wheelchair headrests among children with severe physical disabilities. Method: Participants included children and youth with severe physical disabilities who assessed either retrospectively (49 children, ages 2–25 years) or prospectively (30 children, ages 2–18 years). Parents completed structured questionnaires evaluating user experience, satisfaction, and perceived changes in daily function following a two-week trial with a borrowed headrest. Results: Data from 79 participants were analysed together as the groups did not differ significantly (gender, mean age). Most participants were male (64%) with cerebral palsy (55%). Three types of headrests were most commonly used: the Headaloft (30%), headrests with posterior support only (24%), and the 360 system by Headovations (16.5%). Overall usability, as reported by a parent from the prospective group, was high (System Usability Scale = 82.4 ± 11.3) for all headrests. Most parents reported improvements in their child’s communication (73%), eye contact (68%) and position in transportation (68%). There were also improvements (mean = 4/5) in feeding, breathing and decreased fatigue. No statistically significant differences were found between headrest types. Conclusion: Parents perceived high usability and functional value across headrest designs, particularly when devices were selected through individualised fitting by experienced therapists. The findings highlight the importance of incorporating parent feedback when evaluating head support systems for children with severe disabilities.