How aware is the public of the existence, characteristics and causes of language impairment in childhood and where have they heard about it? A European survey

Working Group 3 of COST Action IS1406

Research output: Contribution to journalArticlepeer-review

Abstract

Public awareness of language impairment in childhood (Developmental Language Disorder (DLD)) has been identified as an important determiner of research and clinical service delivery, yet studies directly assessing public awareness are lacking. This study surveyed awareness across 18 countries of Europe. Method: A questionnaire developed by an international team asked whether respondents had heard of language impairment affecting children, what they thought its manifestations and causes were and where they had heard of it. Respondents were also asked whether they had heard of autism, dyslexia, ADD/ADHD and speech disorder. The questionnaire was administered to members of the public in 18 European countries. A total of 1519 responses were obtained, spanning 6 age groups, 4 educational level groups and 3 income level groups. Results: Across all but one country, significantly fewer people had heard of language impairment than any of the other disorders (or 60 % compared to over 90 % for autism). Awareness tended to be lowest in Eastern Europe and greatest in North-Western Europe, and was influenced by education level, age and income level. People in countries with overall low and overall high awareness differed in their views on manifestations and causes. People had heard of language impairment and autism the same way - most frequently through the media, including Internet, and less frequently through their child's school or a medical professional. Discussion: The study confirms that awareness of language impairment and knowledge of the breadth of its manifestations are low. It also suggests opportunities for how to increase awareness, including greater media coverage of language impairment and more efficient use of venues such as schools and healthcare. Ways in which cultural and linguistic differences may influence public awareness efforts are discussed, including the translatability of clinical labels and scientific terms. These may impact the acceptance of a common term and definition across all countries. As awareness campaigns are gaining momentum, the findings of this study can serve as a baseline against which to compare future findings.

Original languageEnglish
Article number106057
JournalJournal of Communication Disorders
Volume89
DOIs
StatePublished - 1 Jan 2021

Bibliographical note

Funding Information:
This study was funded in part by European Cooperation in Science and Technology grant COST Action IS 1406.Working Group 3 of COST Action IS1406, developed the survey questionnaire used in this study:

Funding Information:
This study is the product of a large collaborative effort, which took place within COST Action IS1406, a research network funded by COST (European Cooperation in Science and Technology, European Union). The contributions are outlined clearly in the manuscript. Working Group 3, under the direction of its chair and vice chair (the second and first author of this article) developed the questionnaire that was used, and the protocol of the study. All members of WG3 are mentioned in the acknowledgments. Also mentioned in the acknowledgments are those people who collected data across countries and the persons who developed the response keys and who combined the data from all the countries.

Publisher Copyright:
© 2020 The Authors

Keywords

  • Awareness
  • Children
  • Developmental language disorder
  • Europe
  • Language impairment
  • Public

ASJC Scopus subject areas

  • Experimental and Cognitive Psychology
  • Linguistics and Language
  • Cognitive Neuroscience
  • Speech and Hearing
  • LPN and LVN

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