Family-Centered Telehealth Supporting Motor Skills and Activity in Individuals with Rett Syndrome

Meir Lotan, Michelle Stahlhut, Alberto Romano, Jenny Downs, Cochavit Elefant

Research output: Chapter in Book/Report/Conference proceedingChapterpeer-review


Rett syndrome is a rare genetically caused condition associated with severe disability and impaired motor functions. Local therapists typically see small numbers of affected individuals, and this limits their capacity to gain experience. Telehealth is being used increasingly to counter poor access to rehabilitation services. Moreover, there is a need to develop management plans that support individuals with Rett syndrome over their lifespan. Three projects in which telehealth support was provided by therapists experienced in Rett syndrome and supported by available local resources are presented in this chapter. The three projects responded to locally identified needs in a cost-efficient way and empowered those working with people with Rett syndrome to maintain and improve their clients' physical function and activity. This chapter will discuss the conceptual underpinnings of delivering a service using a telehealth approach and describe the results and the strategies implemented in the projects mentioned above
Original languageEnglish
Title of host publicationAssistive Technologies for Assessment and Recovery of Neurological Impairments
EditorsFabrizio Stasolla
PublisherIGI Global Publishing
Number of pages25
ISBN (Print)9781799874300
StatePublished - 2021


Dive into the research topics of 'Family-Centered Telehealth Supporting Motor Skills and Activity in Individuals with Rett Syndrome'. Together they form a unique fingerprint.

Cite this