Dilemmas in the (un)veiling of the diagnosis of Alzheimer's disease: Walking an ethical and professional tight rope

Orit Karnieli-Miller, Perla Werner, Judith Aharon-Peretz, Shmuel Eidelman

Research output: Contribution to journalArticlepeer-review

Abstract

Objective: To enhance the understanding and effect of physician's difficulties, attitudes and communication styles on the disclosure of the diagnosis of AD in practice. Methods: Qualitative, phenomenological study, combining pre-encounter interviews with physicians, observations of actual encounters of diagnosis disclosure of AD, and post-encounter interviews. Results: There were various ways or tactics to (un)veil the bad news that may be perceived as different ways of dulling the impact and avoiding full and therefore problematic statements. In the actual encounters this was accomplished by keeping encounters short, avoiding elaboration, confirmation of comprehension and explicit terminology and using fractured sentences. Conclusion: The present study's findings highlight the difficulties encountered in breaking the news about AD, in the way it is actually done, and the problems that may arise from this way of un/veiling the news. The main problem is that the reluctance to make a candid disclosure of the diagnosis as was demonstrated in this study may violate basic moral and legal rights and may also deprive patients and caregivers of some of the benefits of early disclosure of diagnosis. Practice implications: There is a need for assisting physicians to cope with their personal difficulties, problems and pitfalls in breaking the news.

Original languageEnglish
Pages (from-to)307-314
Number of pages8
JournalPatient Education and Counseling
Volume67
Issue number3 SPEC. ISS.
DOIs
StatePublished - Aug 2007

Bibliographical note

Funding Information:
This study was partially supported by the Dean's prize for interdisciplinary study, Faculty of Social Welfare and Health Sciences, University of Haifa. We thank Mr. Adir Adler for his contribution in collecting the data.

Keywords

  • Alzheimer's disease
  • Breaking bad news
  • Dementia
  • Diagnosis disclosure
  • Management and compliance

ASJC Scopus subject areas

  • Medicine (all)

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