Abstract
The births of children with cerebral palsy and multiple disabilities (CPMD)
challenge their families' wellbeing. This article, which is based on a theme
generated from an interview study, suggests that communicative musicality
and the everyday use of music transforms these families' experiences. The
research questions aimed to explore the musicality of individuals with cerebral
palsy, and the use of music within their families. Six parents to individuals with
cerebral palsy and multiple disabilities participated in this study. The data were
collected through a three-interview series with each participant, integrated with
home-video viewing. The interview transcripts were analysed with interpretative
phenomenological analysis and grounded theory. Initially three core themes
were generated (and presented in another publication). The 'transformation'
theme is a fourth theme generated from a later analysis of the research
interviews. It is presented here through the parents' voices as well as the
researchers' interpretations. Theory and research are discussed on
communicative musicality, everyday musicking, and wellbeing. We suggest that
the families' intensive use of nonverbal communicative approaches, and music
transformed their experiences: their moods, participation, and the meanings
related to their lives together.
challenge their families' wellbeing. This article, which is based on a theme
generated from an interview study, suggests that communicative musicality
and the everyday use of music transforms these families' experiences. The
research questions aimed to explore the musicality of individuals with cerebral
palsy, and the use of music within their families. Six parents to individuals with
cerebral palsy and multiple disabilities participated in this study. The data were
collected through a three-interview series with each participant, integrated with
home-video viewing. The interview transcripts were analysed with interpretative
phenomenological analysis and grounded theory. Initially three core themes
were generated (and presented in another publication). The 'transformation'
theme is a fourth theme generated from a later analysis of the research
interviews. It is presented here through the parents' voices as well as the
researchers' interpretations. Theory and research are discussed on
communicative musicality, everyday musicking, and wellbeing. We suggest that
the families' intensive use of nonverbal communicative approaches, and music
transformed their experiences: their moods, participation, and the meanings
related to their lives together.
| Original language | English |
|---|---|
| Pages (from-to) | 117-133 |
| Number of pages | 17 |
| Journal | Approaches: An Interdisciplinary journal for Music Therapy |
| Volume | 11 |
| Issue number | 1 |
| State | Published - 2019 |