TY - JOUR
T1 - Caregiving Activities and Outcomes Among Family Caregivers of Individuals With and Without Parkinson’s Disease and Lewy Body Dementia in California Caregiver Resource Centers
AU - Whitney, Robin L.
AU - Bell, Janice F.
AU - Ogugu, Everlyne
AU - Bhurtel, Shikha
AU - Link, Benjamin M.
AU - Tonkikh, Orly
AU - Kelly, Kathleen
AU - Young, Heather M.
N1 - Publisher Copyright:
© SLACK Incorporated.
PY - 2025/7
Y1 - 2025/7
N2 - PURPOSE: To describe characteristics and outcomes of family caregivers for persons with Parkinson’s disease and Lewy body dementia (PD/LBD) and compare them to those of other family caregivers. METHOD: Using a California statewide database, we examined caregiver characteristics and outcomes (strain, loneliness, worse health, and depressive symptoms) and compared them by care recipient diagnosis (PD/LBD, Alzheimer’s disease and related dementias, or other chronic conditions) using descriptive statistics and multivariable logistic regression. RESULTS: PD/LBD caregivers were more likely to identify as female, married, and college-educated; engage in high-intensity caregiving; and report their care recipient wakes them or others up at night. In multivariable models, PD/LBD caregiving was associated with worse health. Among PD/LBD caregivers, performing medical/nursing tasks was associated with higher odds of strain, loneliness, worse health, and depressive symptoms. CONCLUSION: PD/LBD caregivers are a distinct group who often experience high-demand caregiving. Tailored support can help address the unique needs of this population.
AB - PURPOSE: To describe characteristics and outcomes of family caregivers for persons with Parkinson’s disease and Lewy body dementia (PD/LBD) and compare them to those of other family caregivers. METHOD: Using a California statewide database, we examined caregiver characteristics and outcomes (strain, loneliness, worse health, and depressive symptoms) and compared them by care recipient diagnosis (PD/LBD, Alzheimer’s disease and related dementias, or other chronic conditions) using descriptive statistics and multivariable logistic regression. RESULTS: PD/LBD caregivers were more likely to identify as female, married, and college-educated; engage in high-intensity caregiving; and report their care recipient wakes them or others up at night. In multivariable models, PD/LBD caregiving was associated with worse health. Among PD/LBD caregivers, performing medical/nursing tasks was associated with higher odds of strain, loneliness, worse health, and depressive symptoms. CONCLUSION: PD/LBD caregivers are a distinct group who often experience high-demand caregiving. Tailored support can help address the unique needs of this population.
UR - https://www.scopus.com/pages/publications/105012418339
U2 - 10.3928/19404921-20250416-01
DO - 10.3928/19404921-20250416-01
M3 - Article
C2 - 40258218
AN - SCOPUS:105012418339
SN - 1940-4921
VL - 18
SP - 168
EP - 179
JO - Research in gerontological nursing
JF - Research in gerontological nursing
IS - 4
ER -