Adults With IDD in Supported Accommodation During COVID-19 Lockdown: The Families' Perspective

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Abstract

The present study aims to understand and describe family caregivers' perceptions and experiences regarding contact and relationships with their adult relatives with intellectual and developmental disabilities (IDD) living in supported accommodation during the COVID-19 lockdown. A qualitative phenomenological approach was applied in which 19 Israeli family caregivers (parents and siblings) were interviewed. Inductive thematic analysis revealed themes at the microsystem level (the resident, the caregiver, and their relationship), and at the mesosystem level (the caregivers' interactions with service providers and other residents' families). The findings highlight the pivotal role of family caregivers in times of uncertainty and the need to develop explicit policies and mechanisms to facilitate family engagement in the residents' lives.

Original languageEnglish
Pages (from-to)215-230
Number of pages16
JournalAmerican Journal on Intellectual and Developmental Disabilities
Volume129
Issue number3
DOIs
StatePublished - 1 May 2024

Bibliographical note

Publisher Copyright:
©AAIDD.

Keywords

  • caregivers
  • COVID-19
  • family
  • intellectual and developmental disabilities
  • supported accommodation

ASJC Scopus subject areas

  • General Medicine

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